Tami Stackelhouse – Page 5 – Fibromyalgia Podcast®

Episode 154: Fibromyalgia Stories of Hope & Healing #10

February 25, 2025

If we’re open to it, fibromyalgia can be a path to self-discovery and personal growth. It teaches us about ourselves and how to let go of perfectionism and unrealistic expectations. It highlights the value of embracing small victories. It reminds us that rest is an intentional practice, not a passive activity.

Over time, our bodies change, and we have to adapt. Life doesn’t always go the way we expect it to, and the best thing we can do is to create systems that support us in our lives and that allow us the flexibility to adjust when we need to.

Becoming a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach® can help with this by educating, encouraging, and supporting you in your journey with fibromyalgia. As people with fibromyalgia ourselves, we can give you real tips and tricks from our own lives and things that have helped us with our fibromyalgia.

Today, in the tenth installment of our Stories of Hope and Healing, Tami shares inspiring excerpts from our January 2025 event. You’ll hear from three graduates about their stories and how they’ve been able to improve their fibromyalgia symptoms. On average, our graduates improve their symptoms by about 50% during the program, and in this group, their symptoms were improved by a staggering 63%. All of these graduates ended with a revised fibromyalgia impact questionnaire score of 26 or less, which is very close to what some would consider to be remission.

In this episode you’ll hear about Clara’s recognition that self-care means more than fine-tuning nutrition and exercise, how self-care now looks for Clara, treating rest as an intentional practice, Clara’s insights from working with two different coaches and how each helped her in different ways, how Clara’s Book of Me helped her to better understand her body, why Clara decided to become a Certified Fibromyalgia Coach® to help other women veterans, the main factors that contributed to her 84% improvement in symptoms, Clara’s message for veterans, busy moms, or perfectionists who are struggling with managing their fibromyalgia symptoms, Kim’s perspective on the gift of feeling better and the joy of helping others through coaching, why Kim decided to become a Certified Fibromyalgia Coach® despite having multiple other coaching certifications, the unique hands-on experience and the rounded curriculum of the program, avoiding burnout while managing fibromyalgia and maintaining a sustainable approach, adapting to life’s changes, how a life crisis impacted Kim’s fibromyalgia symptoms, lessons learned from a recent fibro flare, celebrating your progress and day-to-day accomplishments, the various strategies that contributed to Kim’s significantly improved fibromyalgia symptoms, how Kim has helped clients overcome insomnia and manage sleep apnea, why she loves working with women with strong personalities, encouragement for you to seek support and guidance in your fibromyalgia journey, Viktoriia’s decision to join the Certified Fibromyalgia Coach® program, understanding the importance of self-compassion, adapting your life to your fibromyalgia reality, lessons that fibromyalgia teaches us, essential elements in Viktoriia’s recovery journey, the importance of flexibility and adaptability in managing stress and fibromyalgia symptoms, how coaching helped Viktoriia on her journey, the value of community and support among fibromyalgia patients, differentiating coaching from therapy, focusing on proactive management of fibromyalgia rather than coping strategies, the lack of resources for non-English speakers and the importance of bridging this gap in fibromyalgia support, and more.

Episode 153: New Non-Opioid Pain Medication: Journavx

February 11, 2025

Fibromyalgia is an amplifier: any type of pain we experience, fibromyalgia cranks it up a notch. At the same time, we know that it’s crucial to treat pain early. Once we experience an injury or some trigger of acute pain, it’s important to address it as soon as possible to reduce the risk of it becoming a chronic issue.

For many of us with fibromyalgia, pain medication is essential not just for those injuries leading to acute pain but also on our highest pain days or when we’re having breakthrough pain during a flare. In those cases, we need to have options for pain management, and it’s encouraging to see these options being expanded.

Today, Tami discusses the recent FDA approval of the non-opioid pain medication Journavx. She explores how it works, potential benefits for people with fibromyalgia, why it’s crucial to treat pain early, potential side effects and medication interactions related to Journavx, Tami’s optimism about ongoing research and the potential benefits for fibromyalgia patients, and more.

Episode 152: Tami’s Favorite Things: The Best of 2024

January 14, 2025

As an influencer, Tami is constantly trying new things that might help with fibromyalgia or make life easier and more enjoyable. This year, she decided to create a favorite things list to highlight the top seven things from 2024 that she uses in her everyday life and that she wouldn’t want to live without.

These items have improved Tami’s life over the last year, and she first started using them in 2024. This list includes both things that she has been curious about, which she purchased and products that were sent for her to try. Regardless of the source, she only shares the items that she really believes in.

Today, Tami shares the details behind her favorite things from 2024. She explores how she selected the seven items on her list, why the Ember Mug made a significant impact on her water intake, the benefits of the Perfectly Snug Smart Topper for regulating sleep temperature, why Tami hasn’t worn regular socks in over ten years, what makes WIDE OPEN® socks uniquely comfortable, how Hungryroot food delivery service has transformed her eating habits and overall health, her surprising enthusiasm for exercise since starting Club Pilates, the origins and benefits of Pilates, how reformer Pilates supports weaker body parts while strengthening others, why Tami switched to BAEBROW at-home eyebrow tinting, why she loves MacGPT and how she uses it in her business, and more.

If you have anything that you think Tami should try or if you tried any of the items on her list, she would love to hear from you. Send her a message and let her know how they help you.

Episode 151: Goal Setting to Empower Your Fibromyalgia Journey with Kerstin Goldstein

December 31, 2024

When it comes to goal setting, New Year’s resolutions can feel like an exciting and hopeful way to start fresh. The problem is, for most people, they’re too big and idealistic that they fall by the wayside by mid-January.

Especially when we’re living with a chronic condition like fibromyalgia, we have to get realistic about not only what we want to accomplish but the time and energy we have to put toward our goals. We have our lives to live, health issues to manage, families to care for, and more. When you jump onto a “go big or go home” goal, you’re not giving yourself the best chance for success.

Today, Tami is joined by Fitness Coach and Behavior Change Expert Kerstin Goldstein to talk about all the reasons New Year’s resolutions aren’t that helpful. She also shares fibro-friendly ways to set goals that you will actually accomplish. Kirsten and Tami hope that Kerstin’s story will inspire you to think outside the box about what’s possible for your fibromyalgia healing and that their tips will help you achieve your dreams like they have for Kerstin.

In this conversation, Tami and Kerstin discuss Kerstin’s fibromyalgia diagnosis journey, her experience with the healthcare system in Dubai, how her fibromyalgia diagnosis changed her approach to health and wellness, making the transition to online work for better health management, the mental shift required to make lifestyle changes to support your health, taking a holistic approach to recovery, the importance of small steps, Kerstin’s experience of completing a hike to Everest Base Camp, the significance of mental preparation over physical readiness, dealing with plantar fasciitis, Kertin’s mental preparation strategies, finding the balance between rest and activity for those with chronic conditions, viewing obstacles as opportunities for growth, effective goal-setting strategies for those with fibromyalgia, why Kerstin dislikes traditional New Year’s resolutions, the SMART framework for goal setting, building confidence through small goals, treating yourself with kindness when setting and pursuing goals, managing unexpected life events, how habits and goal setting work together to create lasting change, celebrating small wins, approaching change with a sense of joy and fun, the value of external support, and more.

Episode 150: Long Covid Research and Innovative Treatment with Dr. Keith Ellis: Ask the Coach

December 17, 2024

COVID-19 has affected many of us; for some, the journey still hasn’t ended.

For the past four years, Tami has received a ton of questions about the intersection of COVID-19, long COVID, and fibromyalgia. Unfortunately, it’s been tough to find good answers with the spread of conflicting information and misinformation.

Today, Tami is excited to be joined by Dr. Keith Ellis, who’s here to answer our questions with science-backed information. There is a lot of common ground between fibromyalgia and the core symptoms of long COVID, and Dr. Ellis’ insights from his research and expertise as a medicinal chemist shed some light on how the broader interest in long COVID can benefit us as fibromyalgia patients.

In this conversation, Dr. Ellis and Tami discuss what COVID-19 is and how it affects the body, how COVID has changed over the years, the progression from acute COVID infection to developing long COVID symptoms, the rate of development of long COVID, the lack of effective prevention measures for long COVID, surprising demographics of those experiencing long COVID, the importance of a well-functioning immune system, differences Between Long COVID and fibromyalgia, core symptoms of long COVID, difficulties in diagnosing long COVID, Dr. Ellis’ background in medicinal chemistry and why he began his research into treatments for long COVID, a realistic timeline for drug development, the limited understanding of fibromyalgia mechanisms compared to those of long COVID, the need for more research funding for chronic illnesses like fibromyalgia, the microclot hypothesis and its relevance to long COVID symptoms, how breaking down microclots can facilitate recovery from long COVID, the problem with treating symptoms rather than underlying causes in chronic illnesses, the need to study individuals who have recovered from fibromyalgia, Dr. Ellis’ natural supplement to combat long COVID microclots, using mechanisms of action to find natural substitutes for pharmaceutical drugs, empowering patients with information and accessible solutions for chronic conditions, the lack of research and awareness around fibromyalgia in medical education, funding and research disparities for fibromyalgia versus other conditions, the overlap between long COVID and fibromyalgia diagnoses, the need for research to differentiate long COVID from fibromyalgia symptoms, Dr. Ellis’ thoughts on the future of treatment solutions for long COVID and fibromyalgia, and more.

Episode 149: Soft Hugs for Mommy with Mandy Farmer

December 3, 2024

Navigating chronic illness from a family perspective can be challenging for everyone involved. From small changes to daily routines to more significant shifts in family dynamics, learning how to adapt to this new normal can be difficult, especially for children.

Today, Tami introduces you to Mandy Farmer and her book, Soft Hugs for Mommy, created when Mandy recognized the need for something specifically to speak to a child’s perspective. Soft Hugs for Mommy tells the story of a loving family as they navigate the challenges of mommy’s chronic pain condition and it’s filled with tender moments and caring gestures. The book encourages understanding and unconditional love as the family helps Mommy with her invisible illness. Mandy also collaborated with a child psychologist to create a “let’s talk” section to facilitate conversations between parents and children about chronic illness.

In this conversation, Mandy and Tami discuss the themes of family support in Soft Hugs for Mommy, Mandy’s background as a pastor’s wife and her journey with fibromyalgia and chronic pain, how Mandy manages her fibromyalgia and the support from her family, the journey from blogging about chronic pain to publishing her first book, the benefits of attending online writing conferences, what it was like to write Soft Hugs for Mommy, the family-centric narrative of the book, how it focuses on a child’s perspective and challenges adult perceptions, the target audience for Soft Hugs for Mommy, the central messages of empathy, kindness encouraging family teamwork, how Mandy’s personal experiences inspired the book’s story, her connection with the illustrator, conversation starters to facilitate discussions between parents and children about chronic illness, the difficulties and emotional challenges of writing a book, encouragement for aspiring authors, the importance of grieving past expectations while embracing new possibilities in life, the benefits of online communities and resources for those with chronic health conditions, and more.

Episode 148: Finding Strength and Support In Uncertain Times

November 19, 2024

“One of my core beliefs is that something good can come out of everything.” – Tami Stackelhouse

So much of life is uncertain, and as a chronic pain patient, there’s no shortage of things to stress you out and make you worried. From finding out that the medication you need is out of stock to facing the threat of a layoff or having a health scare, there’s bound to be a time in your life when you feel out of control or like you’re at the mercy of others. So, what do we do when faced with those feelings?

First, Tami wants you to know these feelings are normal. We see you and feel you and understand precisely how that feels. Secondly, Tami wants you to recognize that we’re often more understanding with those we love than with ourselves. Don’t deny your body the opportunity to process those emotions so you can move on.

Today, Tami shares strategies you can use in uncertain times to find the strength and support you need. She’s discussing why we should normalize feeling anxious about the inevitable uncertainties in life, the importance of processing emotions rather than suppressing them, the biological benefits of crying, how our beliefs about stress influence how stress affects our bodies, self-compassion and processing your feelings, the various forms of grief and why it’s not limited to situations involving death, coming to terms with the fact that we cannot fix everything, giving yourself space to process your emotions, what unapologetic self-care looks like, focusing on foundational self-care practices, seeking mental health support through counseling, meditation, and community, finding joy amidst the struggles, how understanding your Fibromyalgia Wellness Style℠ can help you to better manage your fibro, the role of a coach in navigating stress and uncertainties, holding onto hope as a guiding light during difficult times, borrowing hope from others who have overcome similar struggles, finding a supportive community to navigate challenges together, setting boundaries for personal well-being, navigating health insurance complexities, ableism and its impact on those with chronic illnesses, becoming an advocate for yourself in navigating healthcare systems, why educating yourself about fibromyalgia is crucial, and more.

Episode 147: Navigating Vertigo with Fibromyalgia

November 5, 2024

“The room’s not moving, but you still feel like you’re on a boat. It just feels terrible.”

About 60 to 70% of all fibromyalgia patients also deal with dizziness, which shows up in two main ways: lightheadedness and vertigo. With lightheadedness, you’ll typically experience a feeling like you might faint or pass out, whereas with vertigo, it feels like the world is moving even when you’re holding still.

For the past week, Tami has been dealing with an episode of bad vertigo, and she decided to use this as an opportunity to bring the topic to the podcast since, chances are, you’ve experienced dizziness too.

Today, Tami is talking about the differences between lightheadedness and vertigo, the most common causes of lightheadedness in fibromyalgia patients, her recent experience with vertigo and how it compared to her first episode, the role of the vestibular system, conditions which cause vertigo, symptoms of BPPV (benign paroxysmal positional vertigo), Ménière Disease and unilateral vestibular hypofunction, how these conditions differ from each other, vestibular migraines and their connection to vertigo symptoms, medications such used to treat vertigo and their effects on patients, vestibular rehabilitation therapy and why it’s essential for recovery, specific exercises used in vestibular rehabilitation to improve balance, how the Epley maneuver helps with BPPV-related vertigo, what research shows about the benefits of whole body vibration for treating vertigo, Tami’s current medications (including Scopolamine (patch), Dramamine Less Drowsy (meclizine), Zofran (ondansetron), Phenergan (promethazine)), and more.

Episode 146: The Healing Power of Authentic Storytelling with Meg Stafford

October 22, 2024

“When we share our stories, it helps everyone around us.”

As our students go through their training programs and approach graduation, many of them start to think about sharing their fibromyalgia stories. The idea can be daunting, especially with fibromyalgia, because there’s a stigma that comes with it. For many of us, it feels safer to keep it to ourselves because we have no idea how people will react. What will that look like? What will it feel like?

For Tami, sharing her story was an essential part of her journey, and she’s a big believer in how our stories can help the people they reach. Her book and this podcast contain so much of her story in addition to the practical strategies and tools they offer. Our Stories of Hope and Healing episodes with our graduate stories are some of the most listened-to episodes of the show. Our stories have the power to help ourselves and those around us to feel less alone and give us hope.

Today’s guest, Meg Stafford, joins Tami to talk about how sharing our stories helps the healing journey. Meg was diagnosed with breast cancer in 2007, and as part of keeping in touch with friends and family during her diagnosis and treatment, she started an email newsletter, which so many people found helpful that Meg turned it into a book.

In this conversation, Meg and Tami discuss Meg’s experience with breast cancer, why she created an email newsletter to document her journey, the therapeutic value of sharing her experiences, how she managed the challenges of sharing her diagnosis, her decision to rely on her medical team rather than searching for information online, the fear of sharing personal stories and the uncertainty of others’ reactions, surprising interactions she had with during her treatment, how she learned to handle different responses to her health updates, unexpected support and unsolicited advice she received during her treatment, the importance of sharing stories for both the storyteller and those who listen, how sharing her experience helped others in unexpected ways, why specific offers of assistance were much easier to accept, how to think about who receives personal updates during health challenges, why Meg chose to be transparent about her day-to-day experiences during treatment, the lessons she learned about accepting help from others, recognizing that fun and joy have an important place in healing, how storytelling can help to process fears and difficult experiences, writing as a therapeutic tool, the importance of expressing pain and emotions, how you can get started with sharing your story, preparing for and managing your response to others’ reactions to your stories, and more.

If you haven’t come out of the closet, so to speak, about your fibromyalgia, Tami hopes this episode gives you some inspiration and some practical tips to try in sharing your story.

Episode 145: How to Handle Fibromyalgia Symptoms in Your Family

October 8, 2024

“What do you do if you notice fibromyalgia symptoms in a family member?”

A few weeks ago, one of the students in our Certified Fibromyalgia Coach® training class raised this question, and Tami hears variations of it all the time. Whether it’s your kid, sister, mom, or another relative, figuring out how best to handle the situation can be difficult.

A big part of answering this lies in the knowledge that fibromyalgia has a genetic component. If you have fibromyalgia, your first-degree relatives (parents, siblings, and children) are eight times more likely to develop fibromyalgia. The other part is recognizing that treating acute injuries quickly and well is crucial to preventing chronic pain. Considering these factors, if you see something happen to your close relative, you’d want to bring awareness to the risks so they can treat the situation immediately and increase their chances of having the best possible outcome.

Today, Tami explores how to recognize and address fibromyalgia symptoms in family members and what you can do to support loved ones in these situations. In this episode, Tami shares the genetic risks associated with fibromyalgia, the importance of early treatment for injuries to prevent chronic pain, and potential fibromyalgia development, why we need to challenge the notion that discussing fibromyalgia symptoms could “plant a seed” in loved ones’ minds, how being aware of genetic predispositions should influence lifestyle choices, the stigma associated with fibromyalgia, the need to openly address risk factors, treating injuries and symptoms promptly to mitigate long-term pain issues, five practical tips for supporting family members showing fibromyalgia symptoms, the role of lifestyle choices in risk management, the MTHFR gene mutation and its implications for fibromyalgia symptoms, the necessity of quality sleep for preventing fibromyalgia symptoms, why maintaining a protein-rich diet supports fibromyalgia management, understanding your energy levels and how to pace yourself, why it’s essential to seek prompt treatment for early signs of fibromyalgia, and more.

Speaker: Tami Stackelhouse