“When we share our stories, it helps everyone around us.”

As our students go through their training programs and approach graduation, many of them start to think about sharing their fibromyalgia stories. The idea can be daunting, especially with fibromyalgia, because there’s a stigma that comes with it. For many of us, it feels safer to keep it to ourselves because we have no idea how people will react. What will that look like? What will it feel like?

For Tami, sharing her story was an essential part of her journey, and she’s a big believer in how our stories can help the people they reach. Her book and this podcast contain so much of her story in addition to the practical strategies and tools they offer. Our Fibromyalgia Stories of Hope and Healing episodes with our graduate stories are some of the most listened-to episodes of the show. Our stories have the power to help ourselves and those around us to feel less alone and give us hope.

Today’s guest, Meg Stafford, joins Tami to talk about how sharing our stories helps the healing journey. Meg was diagnosed with breast cancer in 2007, and as part of keeping in touch with friends and family during her diagnosis and treatment, she started an email newsletter, which so many people found helpful that Meg turned it into a book.

In this conversation, Meg and Tami discuss Meg’s experience with breast cancer, why she created an email newsletter to document her journey, the therapeutic value of sharing her experiences, how she managed the challenges of sharing her diagnosis, her decision to rely on her medical team rather than searching for information online, the fear of sharing personal stories and the uncertainty of others’ reactions, surprising interactions she had with during her treatment, how she learned to handle different responses to her health updates, unexpected support and unsolicited advice she received during her treatment, the importance of sharing stories for both the storyteller and those who listen, how sharing her experience helped others in unexpected ways, why specific offers of assistance were much easier to accept, how to think about who receives personal updates during health challenges, why Meg chose to be transparent about her day-to-day experiences during treatment, the lessons she learned about accepting help from others, recognizing that fun and joy have an important place in healing, how storytelling can help to process fears and difficult experiences, writing as a therapeutic tool, the importance of expressing pain and emotions, how you can get started with sharing your story, preparing for and managing your response to others’ reactions to your stories, and more.

If you haven’t come out of the closet, so to speak, about your fibromyalgia, Tami hopes this episode gives you some inspiration and some practical tips to try in sharing your story.

Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers.