“Fibromyalgia can take a lot from us, but it doesn’t have to take everything.” – Tami Stackelhouse

One of the hardest parts of living with fibromyalgia is how much joy can quietly disappear from your life. Activities you used to love start feeling out of reach and even simple things like going out with friends or spending time on a hobby can feel too draining. Over time, it’s easy to lose sight of what brings you happiness when most of your energy is going toward managing your pain and getting through the day.

But joy is not something you “earn” once you feel better. Joy is part of what helps you feel better. It plays an essential role in calming your nervous system, lowering pain levels, and helping your body shift out of constant survival mode. When fibromyalgia makes your world smaller, joy often feels like the first thing to go, but it’s actually one of the most powerful tools you have for healing. The good news is that joy doesn’t need to be big or complicated. It just needs to be intentional.

In this episode, Tami walks you through her Joy List exercise, a simple and meaningful practice to help you identify personal sources of joy. She talks about how fibromyalgia can lead to a loss of hobbies, work, and social connection, the emotional weight that follows these changes, the biology of joy, how dopamine, serotonin, and oxytocin support pain relief and healing, three reflective questions to help you rediscover what brings happiness and meaning, practical tips for creating your Joy List, why certain activities bring joy and how to adapt them in new ways, accepting that joy may look different now and that change is part of healing, focusing on the feeling of joy rather than trying to recreate past experiences, finding new forms of joy through creativity and flexibility, six simple ways to add joy into your daily life, reframing your understanding of joy as a muscle, why reconnecting with joy is crucial for managing fibromyalgia, why now is the best time to start or revisit your personal joy list, supportive resources you can utilize on your journey of rediscovering joy, knowing when to seek help from a coach or community, and more.

Remember, the parts of you that feel lost are still there, waiting for you to reach for them again.

Have you ever wished people could truly understand what fibromyalgia feels like, or what it’s like to live with a condition that never really goes away? You are not alone. Explaining fibromyalgia to the people you love is one of the hardest parts of living with an invisible illness.

From the outside, you might look perfectly fine, but inside, you feel like you’ve been run over by a truck. It’s even harder when your symptoms change from day to day. You might manage errands or a social event one day and need to rest the next, leaving people confused or questioning what’s going on. Trying to explain that experience to someone who has never experienced chronic pain feels impossible.

Today, Tami is sharing tools you can use to make these difficult conversations a little easier without wearing yourself out in the process. Using the right strategies and language can make a world of difference. Whether it’s a simple analogy, a short story that captures the daily challenges, or setting clear boundaries around what you can and can’t explain, these conversations can make all the difference in whether you feel supported or alone.

In this episode, Tami shares why fibromyalgia is so hard to explain, how its invisibility, fluctuating symptoms, and emotional weight affect daily life, simple, relatable analogies others without chronic pain can relate to, the power of using tactile demonstrations to show pain and sensitivity, the Spoon Theory and other analogies to explain daily limits, sharing books and other media to educate others, how you can use stealth tactics to help your loved ones understand what you’re experiencing, understanding the three circles of trust, setting boundaries and learning to say no without guilt, resources that help with explaining fibromyalgia to children, how growing up with a family member with a chronic illness can teach empathy and resilience, choosing the right time and place to have these fibro conversations, accepting imperfect help and building a supportive team, why you need to create a flare survival plan, how professionals and coaches can help to improve your quality of life, and more.

“You don’t have to do it all this holiday season. Do the things that matter most to you.” – Tami Stackelhouse

The holidays can be a difficult time of year for people living with fibromyalgia. Between shopping, cooking, decorating, family gatherings, and endless to-do lists, it’s easy to push yourself too far and end up in a massive fibro flare. You want to show up for the people you love, but your body will remind you that there’s only so much you can give.

Luckily, a memorable holiday season doesn’t just come from doing everything you’ve always done. Instead, it should be about doing what matters most. By learning to prioritize, pace yourself, and let go of the “shoulds,” you can create a season that’s joyful and supportive of your health instead of draining it. As we head towards the holidays, take your time, slow down, choose what feels right for you, and give yourself permission to rest without guilt.

In this episode, Tami talks about why it’s time to start thinking about navigating the holiday season, balancing energy and prioritizing what matters, planning buffer/recovery days before and after events, fibro-friendly food strategies, tips for eating safely, setting boundaries, mindset shifts for a less stressful holiday, time-savers to reduce stress this holiday season, why you should think ahead about dressing for comfort and creating a sensory-friendly environment for yourself, the impact of focusing on meaningful decorations and simplifying your holiday decor, the importance of accepting help, prioritizing joy over holiday “shoulds,” letting go of old traditions and creating new ones, and more. You’ll also get a sneak peek into the upcoming Living Well with Fibromyalgia Summit: Holiday Edition, featuring talks from Certified Fibromyalgia Coaches® on areas like balancing commitments, setting boundaries, and creating joyful new traditions.

“Getting well can be expensive. Too often, the things that help us most are the things insurance won’t cover.” – Tami Stackelhouse

For too many of us living with fibromyalgia, our quality of life and access to care depend on what we can afford, not what we actually need. Coaching, acupuncture, mobility aids, functional testing, and even travelling to see the right doctor often aren’t covered by insurance. That gap leaves countless people stuck, unable to move forward on their healing journey simply because of finances.

This is why The Sherri Little Foundation was created. Founded in honor of one of Tami’s clients who recognized how financial privilege shaped her fibromyalgia care, the foundation provides micro-grants to help people with chronic pain get the support they need but can’t otherwise afford. From mobility scooters to travel expenses, accessibility modifications, or certain therapies, these grants are designed to remove barriers and give you the chance to reclaim your life.

In this episode, Tami discusses how financial barriers impact chronic pain patients, why The Sherri Little Foundation was created, Tami’s experience with out-of-pocket medical costs, Sherri Little’s story, the mission of the foundation to support those with limited resources, Tami’s personal connection to its work, the story of Lily, a 14-year-old grant recipient from 2024, examples of how grants have helped fill systemic gaps in accessibility and care, eligible uses for these grants, details of the 2025 grant cycle, including exactly how you can apply,  financial and age requirements for applicants, the application process, tips for preparing application materials in advance, how the grant selection committee prioritizes applications, how you can get involved and support the mission, Tami’s hopes for the future of the foundation, and more.

This year, the application window will open at midnight on September 1, 2025. The window will close on September 7, 2025, or when 50 applications have been submitted, whichever comes sooner. Tami expects the foundation to reach its application limit on the day of opening or the following day, so don’t delay!

“Listening to your body is one of the key things you need to do to make everything else work.”

Over the past ten years of teaching people about fibromyalgia, Tami has seen certain issues come up over and over that get in the way of the healing journey. Last week, during our Certified Fibromyalgia Coach® training class, a student raised an important question about how we identify these issues when we have a client who isn’t improving as we would like them to.

The more you learn about fibromyalgia, the more aware you are of tools that could help you and why your symptoms may not be improving. At the same time, there are some less obvious issues that often go unnoticed, but which must be addressed to make progress. Things like working with a doctor who doesn’t quite know what to do with us, being in a season of life that doesn’t allow us to prioritize ourselves, or unconscious trauma responses that block us from making the changes we need to.

In today’s episode, Tami is sharing the top three hidden reasons why your fibromyalgia symptoms might not be improving. She discusses why not listening to your body can block healing (whether or not it’s unintentional), the key difference between consciously ignoring your body and being unaware of what it needs, the benefits of writing your body’s owner’s manual, how trauma can make it harder to manage your symptoms, acknowledging that rest and awareness are essential for healing, how undiagnosed or undertreated health conditions can get in the way of your healing journey, underlying conditions that Tami had to address as a part of her fibro journey, advocating for yourself and finding medical professionals who listen, how fibromyalgia amplifies other sources of pain, the importance of being realistic and managing expectations, why some people may not be ready, willing, or able to do the work required for improvement, when it’s okay not to do the work, support for those facing financial or geographic limitations, and more.