Subscribe: Apple Podcasts | Spotify | Amazon Music | Google Podcasts | Audible | iHeartRadio | Pandora | Subscribe on Android There aren’t enough stories out there of people who have fibromyalgia and who have found ways to feel better. Many of our doctors tell us there’s nothing we can do, and it’s not uncommon to…
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“It’s never too late for your second spring.” – Angi McClure
Have you ever felt like you were losing your physical independence because of your fibromyalgia? Maybe you struggle with tasks like climbing stairs, carrying groceries, or getting up off the floor? For many of us living with fibromyalgia, even simple daily tasks can feel draining.
Strengthening your resilience is the key to adapting through life’s seasons. The good news is that, no matter what age or stage of your life you’re in, there are gentle, practical, and sustainable ways to reconnect with your body, build resilience, and enhance your physical independence.
Today, Tami is joined by Angi McClure, a neuro-based movement therapist and founder of Bamboo Bodies. Angi specializes in age science and supports her clients through functional Chinese medicine, nutrition, and seasonal lifestyle habits. While Angi’s work focuses on age training and longevity, the principles apply perfectly to those of us with fibromyalgia.
In this conversation, Tami and Angi discuss how Angi became interested in exploring age training and her personal and professional journey into supporting older adults, the parallels between aging and living with fibromyalgia, adapting to life’s changes, why we should redefine physical independence as an athletic pursuit, recognizing the resilience of those with chronic illness and pain, why “training like an athlete” is more about mental and emotional resilience than physical exercise, the meaning of neurological resilience, why community is a crucial element in reconnecting with your body, energy management and The Spoon Theory, seasons of life and how they relate to aging and fibromyalgia, insights from Chinese medicine on life’s seasons and their impact on health, the “second spring” and why it’s never too late to adapt, how Angi bridges neuroscience and Chinese medicine, why pain is a brain output, how mindset and working on yourself builds resilience, the “threat bucket” analogy for stress and pain, practical ways to lighten your load, practical tools you can start using to support resilience, how to find joy in movement, the need for a personalized approach to movement, the benefits of qigong and playful movement, and more.
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This podcast episode explores effective techniques for tackling #fibromyalgia symptoms head-on! Join us as we delve into natural approaches for #fibromyalgia to reduce discomfort, elevate energy levels, combat brain fog, and promote restful sleep.
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Subscribe: Apple Podcasts | Spotify | Amazon Music | Google Podcasts | Audible | iHeartRadio | Pandora | Subscribe on Android “It’s pretty amazing how much stress, emotion, memory, and trauma the pelvic bowl itself holds.” – Dr. Desiree Cassell Pelvic floor health is important to all of us. We all have a pelvic floor, and…
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This podcast episode explores effective techniques for tackling #fibromyalgia symptoms head-on! Join us as we delve into natural approaches for #fibromyalgia to reduce discomfort, elevate energy levels, combat brain fog, and promote restful sleep.
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“Autism is not a problem that needs to be solved. Our co-occurring conditions are what need to be solved or accommodated.” – Dr. Angela Kingdon
Did you know 41% of people with strong autistic traits also have fibromyalgia? It works the other way around, too, with 10 to 20% of people with fibromyalgia having autistic traits. Even for those of us who only have one of the two, there are many parallels, and our shared experiences are numerous. Embracing this as part of our identity and accepting the strengths and challenges associated with fibromyalgia and autism is the key to finding new levels of joy and healing.
Today, Tami is joined by Dr. Angela Kingdon to talk about the connection between autism and fibromyalgia and clear up the rampant misinformation around autism. Angela is a dynamic autistic advocate, author, and speaker renowned for her impactful work in promoting neurodiversity and supporting autistic individuals.
In this conversation, Angela and Tami discuss Angela’s experiences from late diagnosis to burnout, statistics on fibromyalgia and autism, understanding the concept of autistic traits, the challenges in obtaining an autism diagnosis for women and people of color, the importance of self-diagnosis in managing your health, how masking can complicate autism diagnosis, risks associated with high masking, the growing recognition of fibromyalgia and autism in healthcare, the stigmatization and misunderstanding of autism, why it’s important to research and request accommodations the causes of autism, debunking the vaccine controversy, the impact of genetics vs. environment in developing autism, the need for more research to support autistic individuals, the prevalence of fibromyalgia and other conditions among autistic individuals, creating an inclusive environment that benefits everyone, recognizing autism as a different way of processing information, synaptic pruning in brain development and its relation to autism, differences in sensory processing in autistic brains, the uniqueness of each autistic individual’s experience and the need for personalized accommodations, managing overwhelming situations and their impact on the nervous system, how societal factors influence the expression of autism, what do to next if you think you may be autistic, reasons for seeking a formal autism diagnosis, challenges associated with having a fibromyalgia or autism diagnosis, common misconceptions related to autism, navigating the pressure to conform, social challenges faced by autistic individuals and the desire for connection, comparing experiences of autism and fibromyalgia, the shift from viewing autism as a medical issue to embracing it as part of your identity, the role of coaching, the correlation between identity acceptance and mental health outcomes, accepting your identity as the first step in the healing process, the benefits of having a supportive community of people with similar experiences, the challenges of labels in the autistic community, understanding the spectrum concept in autism, how autism and fibromyalgia symptoms can vary from day to day based on numerous factors, finding joy in your identity, the bond between fibromyalgia and autism communities, and more.
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1 in 16 people in the US are affected by fibromyalgia, and 1 in 13 women specifically—that’s about 6.4% of the population. To put these statistics in perspective, breast cancer affects 1 in 8 women, cervical cancer affects 1 in 13 women, and colon cancer affects 1 in 25 women and 1 in 23 men. Despite the similarity in prevalence, fibromyalgia has a long way to go in terms of awareness and medical training when compared to these other conditions.
In our mission to improve this, a critical avenue for increasing awareness has been obtaining official proclamations for states to recognize May as Fibromyalgia Awareness Month and May 12th as Fibromyalgia Awareness Day. Governor’s Proclamations are powerful tools that help advocates validate the struggles faced by fibromyalgia patients and garner support from state officials. This can lead to increased funding for research and better resources for those of us living with fibromyalgia.
Today, Tami is joined by her best friend and fellow advocate, Melissa Swanson. A few years ago, Tami and Melissa decided to bring together their communities, along with several other fibromyalgia organizations, and coordinate the efforts to obtain a Governor’s Proclamation in every state. Their goal is to “color the map purple” for fibromyalgia awareness, and Melissa is the coordinator for this effort.
In this conversation, Melissa and Tami discuss what a Governor’s Proclamation is, how it helps to raise credibility and awareness, the steps involved in requesting a Governor’s Proclamation, the criteria we make sure to cover in Proclamation requests, why May 12th was chosen as Fibromyalgia Awareness Day, working with various fibromyalgia organizations to obtain Proclamations, how Melissa helps individuals with the application process, their progress on the goal ot “color the map purple”, the benefits of coordinating with various groups in obtaining Proclamations, how you can help in your state, how collective efforts strengthen the push for fibromyalgia awareness, reasons for denial of Proclamation requests, the application timeline and how the process varies by state, Melissa’s preparations for the next round of applications, the ongoing need for help regardless of your state’s status, Tami’s experience requesting a Governor’s Proclamation in Oregon, statistics on fibromyalgia’s prevalence among the U.S., why we need your help, upcoming events related to Fibromyalgia Awareness Day, and more.
Every voice matters in the fight for awareness and support for fibromyalgia. Let’s work together to make a difference.
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When you receive a fibromyalgia diagnosis, it’s natural to wonder if things will ever get better. With the lack of fibro education in medical schools, many of us received our diagnosis alongside a statement that we “just have to learn to live with it”. With such a bleak prognosis, it‘s no wonder the road ahead becomes much more difficult.
The good news is, we can all feel better. A fulfilling life with fibromyalgia is possible, and recognizing that makes a significant difference. Far from the doom and gloom statements many of us have encountered, there is so much you can learn and do to improve your fibromyalgia symptoms. Even if you think you’ve tried it all, there’s always something else to try.
Today, Tami is joined by fibromyalgia educators and advocates, Dr. Ginevra Liptan and Sharon Waldrop. Dr. Ginevra and Sharon recently launched The Fibro Show on YouTube as part of their mission to spread awareness and empower people living with fibromyalgia. They’re sharing their fibro journeys and sharing resources you can access to improve your life with fibromyalgia.
In this conversation, Dr. Ginevra, Sharon, and Tami discuss Dr. Ginevra’s progress since her last time as a guest, her decision to create a YouTube show, Sharon’s fibromyalgia journey and the challenges she faced at a young age, her decision to form the Fibromyalgia Association and how it has evolved, the difficulties she faced in finding adequate support after her diagnosis, the important recognition that a fulfilling life is possible despite her fibromyalgia diagnosis, Dr. Ginevra and Sharon’s mission for The Fibro Show, how the Fibromyalgia Association expanded into a national community with international reach, the need for support groups to focus on education and actionable solutions, plans for the upcoming Fibromyalgia Awareness Day Conference, what you can expect to experience at the virtual conference, actionable strategies for self-care, why sponsors are critical, the advantages of virtual events for accessibility and comfort for people with fibro, what it’s been like creating a YouTube show for fibromyalgia education, upcoming interviews and the format of the new YouTube show, why collaboration is crucial to enhance awareness and support in the fibromyalgia community, funding issues for fibromyalgia initiatives and the need for financial support, educating healthcare providers about fibromyalgia, Tami’s experience speaking to medical students about pain and fibromyalgia awareness, the lack of fibro education in the medical school curriculum, Dr. Ginevra’s plans for the next stage of her career, making space for new experiences and personal growth, Sharon’s upcoming plans and her focus on menopause coaching, the overlap between menopause and fibromyalgia symptoms in women, upcoming Fibromyalgia Awareness Day events in the US and Europe, and more.
If you have ever felt alone in your fibromyalgia or frustrated at the lack of awareness and resources, this episode is for you.
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When it comes to goal setting, New Year’s resolutions can feel like an exciting and hopeful way to start fresh. The problem is, for most people, they’re too big and idealistic that they fall by the wayside by mid-January.
Especially when we’re living with a chronic condition like fibromyalgia, we have to get realistic about not only what we want to accomplish but the time and energy we have to put toward our goals. We have our lives to live, health issues to manage, families to care for, and more. When you jump onto a “go big or go home” goal, you’re not giving yourself the best chance for success.
Today, Tami is joined by Fitness Coach and Behavior Change Expert Kerstin Goldstein to talk about all the reasons New Year’s resolutions aren’t that helpful. She also shares fibro-friendly ways to set goals that you will actually accomplish. Kirsten and Tami hope that Kerstin’s story will inspire you to think outside the box about what’s possible for your fibromyalgia healing and that their tips will help you achieve your dreams like they have for Kerstin.
In this conversation, Tami and Kerstin discuss Kerstin’s fibromyalgia diagnosis journey, her experience with the healthcare system in Dubai, how her fibromyalgia diagnosis changed her approach to health and wellness, making the transition to online work for better health management, the mental shift required to make lifestyle changes to support your health, taking a holistic approach to recovery, the importance of small steps, Kerstin’s experience of completing a hike to Everest Base Camp, the significance of mental preparation over physical readiness, dealing with plantar fasciitis, Kertin’s mental preparation strategies, finding the balance between rest and activity for those with chronic conditions, viewing obstacles as opportunities for growth, effective goal-setting strategies for those with fibromyalgia, why Kerstin dislikes traditional New Year’s resolutions, the SMART framework for goal setting, building confidence through small goals, treating yourself with kindness when setting and pursuing goals, managing unexpected life events, how habits and goal setting work together to create lasting change, celebrating small wins, approaching change with a sense of joy and fun, the value of external support, and more.
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COVID-19 has affected many of us; for some, the journey still hasn’t ended.
For the past four years, Tami has received a ton of questions about the intersection of COVID-19, long COVID, and fibromyalgia. Unfortunately, it’s been tough to find good answers with the spread of conflicting information and misinformation.
Today, Tami is excited to be joined by Dr. Keith Ellis, who’s here to answer our questions with science-backed information. There is a lot of common ground between fibromyalgia and the core symptoms of long COVID, and Dr. Ellis’ insights from his research and expertise as a medicinal chemist shed some light on how the broader interest in long COVID can benefit us as fibromyalgia patients.
In this conversation, Dr. Ellis and Tami discuss what COVID-19 is and how it affects the body, how COVID has changed over the years, the progression from acute COVID infection to developing long COVID symptoms, the rate of development of long COVID, the lack of effective prevention measures for long COVID, surprising demographics of those experiencing long COVID, the importance of a well-functioning immune system, differences Between Long COVID and fibromyalgia, core symptoms of long COVID, difficulties in diagnosing long COVID, Dr. Ellis’ background in medicinal chemistry and why he began his research into treatments for long COVID, a realistic timeline for drug development, the limited understanding of fibromyalgia mechanisms compared to those of long COVID, the need for more research funding for chronic illnesses like fibromyalgia, the microclot hypothesis and its relevance to long COVID symptoms, how breaking down microclots can facilitate recovery from long COVID, the problem with treating symptoms rather than underlying causes in chronic illnesses, the need to study individuals who have recovered from fibromyalgia, Dr. Ellis’ natural supplement to combat long COVID microclots, using mechanisms of action to find natural substitutes for pharmaceutical drugs, empowering patients with information and accessible solutions for chronic conditions, the lack of research and awareness around fibromyalgia in medical education, funding and research disparities for fibromyalgia versus other conditions, the overlap between long COVID and fibromyalgia diagnoses, the need for research to differentiate long COVID from fibromyalgia symptoms, Dr. Ellis’ thoughts on the future of treatment solutions for long COVID and fibromyalgia, and more.
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