It can be super tough to say, “No, I can’t do that.” It’s so easy for fibromyalgia to feel like an enormous taking away of things. We can’t do the job we used to do. We can’t do the activities we used to do. We can’t eat the foods we used to be able to eat. But we can do a little mindset shift and realize we’re doing it for a reason. It’s never about saying No. You learn to say “No” so that you can say “Hell YES!” to other things: the things that really matter to you, the things that will help make your life feel rich and rewarding and fun again.
Do you dream of travel and adventure, but the thought of going out-of-town, even for a short weekend, feels defeating — and almost sends you in a flare just thinking about it? Traveling with fibromyalgia can be challenging! These tips from Tami will show you how you can take that summer vacation, visit distant family, or even holiday in Spain, without all of the pain and overwhelm.
Episode 11: Travel Tips for Fibromyalgia
Every 10th episode is a special one, where Tami answers YOUR burning questions. Our first listener question is one that Tami hears quite a lot: “Does the weather affect fibromyalgia?” Listen in for some of the science behind the answer, as well as how our own bodies may know things that science hasn’t figured out yet.
Episode 10: Ask the Coach: Does Weather Affect Fibromyalgia?
If you put a gun to my head and said, “Tell me the one thing that turned your life around with fibromyalgia, and you can only choose one.” That one thing would be learning the fine art of self-care, learning how to listen to my body and give her what she needs so she can heal. This is the #1 thing that will make the biggest difference in how you feel. It is also the hardest part of the job. Taking care of yourself when you don’t feel good or when you’re frustrated with your body can be so, so challenging.
Episode 09: The Fine Art of Self-Care
Do you always do exactly what your doctor tells you to? Or do you sometimes think, “You have NO clue what it’s like to live in a fibromyalgia body? Do you realize what you’re asking me?” Or do you just forget because you have brain fog? There are so many reasons why you might not be doing the things your doctor is telling you to do. A Certified Fibromyalgia Coach has been there, done that, and is trained specifically in fibromyalgia treatment and management strategies. Learn how that direct, personal experience can help you bridge the gap and feel better faster.
Episode 08: What is Fibromyalgia Coaching?
As patients, we feel so powerless sometimes. We’re at the mercy of our doctors. We’re at the mercy of our insurance company. A health coach can help us realize that we have what’s called “self-efficacy.” We gain a sense of control over our pain, and we engage in our own care in a vitally powerful way. When we engage in our care and gain that control, it’s really empowering. We understand that, “I am responsible for myself, and I have the ability to improve my pain.”
Episode 07: The Science Behind Coaching as a Treatment Option with Dr. James Fricton
You are the world’s foremost expert at living in your body. No one is a bigger expert on who you are and how you feel than you. Your Mission, should you choose to accept it, is to take responsibility for your own healthcare. Discover how to develop a more collaborative relationship with our providers, and provide them with the right information, so they can make the right diagnosis and help us create the right treatment plan for our specific challenges… and then follow through on what we decide we need to do.
Episode 06: The Patient’s Role in Their Own Healthcare
Dr. Ginevra Liptan had to keep her own diagnosis secret, in fear of being harshly judged by her peers in medical school. While we have come a long way from the stigma that was once attached to fibromyalgia, there are still far too many of us suffering in silence. In this episode, Dr. Liptan sheds light on the latest research and treatment options that give her hope.
Episode 05: What is Fibromyalgia? Part 2 with Dr. Ginevra Liptan
As of today, we don’t really know what causes fibromyalgia, and there is no cure. However, I believe your symptoms can be managed so well that you can live the life you want to live. Knowledge is power. Find out more about the background and history of fibromyalgia, as well as the cutting-edge scientific study that is re-defining how we think about and treat this disorder in today’s Foundations episode.