Speaker: Ann Garner

Episode 134: The New Face of Fibromyalgia Advocacy with Ann & Lily Garner

“No matter how small, any type of advocacy you do will have an impact.” – Lily Garner

According to the NIH, fibromyalgia affects 1 in 13 women in the US. That means about twice as many women are diagnosed with fibromyalgia as are diagnosed with colon cancer, and while you’re not going to die from fibromyalgia, living with fibro pain and fatigue can feel like its own kind of death. Despite this and the fact that this rate is on par with or higher than many other conditions, fibromyalgia research continues to receive less funding than its counterparts.

The massive gap in advocacy and awareness means that while every woman knows to get a mammogram each year to screen for breast cancer or annual exams for cervical cancer, most doctors have never been taught how to screen for fibromyalgia or how to treat it. Some educational institutions still teach that fibromyalgia is a psychological disorder.

If we want this to change, we need more funding for fibromyalgia research and more people like today’s guests, Ann and Lily Garner, to advocate on behalf of our community. Ann and Lily Garner join Tami in this episode to discuss their experience advocating for fibromyalgia with lawmakers in Washington, D.C. Ann is a Certified Fibromyalgia Coach® who has lived with fibromyalgia for over 20 years and her 14-year-old daughter, Lily, has been living with chronic illnesses for the last six years.

In this conversation, Tami, Ann, and Lily talk about Lily’s diagnoses and the long journey of medical gaslighting to get there, the massive difference it makes when you find the right doctor, Ann’s decision to become a fibro coach, how Ann’s experience advocating for Lily led to her working with a Certified Fibromyalgia Coach®, why Ann and Lily decided to go to D.C. to join fibromyalgia advocacy efforts, the importance of having young people as fibromyalgia advocates, what the day-to-day of their advocacy trip to D.C. looked like, the type of responses and reactions they received from lawmakers in D.C., what’s next for Ann and Lily, Ann’s work as a Certified Fibromyalgia Coach®, and more.

Tami hopes this episode will inspire you to go out there, do your part, and let’s change the world together.

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Episode 99: Uncovering Who I Was Meant To Be with Ann Garner

When you’re healthy, you can be more you and bring your special magic to the world.

Over twenty years ago, when today’s guest Ann Garner Coulter was diagnosed, we were in what Tami describes as the dark ages of fibromyalgia. There were no FDA-approved medications, and it was even more challenging to find a doctor who knew enough about the condition to help. As a result, Ann had very few resources to help her manage her fibromyalgia, and she struggled for a long time. While dealing with those symptoms, including pain consistently in the seven to nine range, Ann continued working full-time but eventually lost her job due to her health.

Around the same time, her young daughter received a ME/CFS diagnosis. Ann stepped in as an advocate for her and discovered a side of herself she never knew existed. That discovery led her to more extensive advocacy work and her decision to become a Certified Fibromyalgia Coach®. Ann has a remarkable recovery story, and she’s now taken her pain down to a two or three most days. She’s also returning to work and working her way off of disability.

In this conversation, Tami and Ann discuss Ann’s journey to her fibromyalgia diagnosis over 22 years ago, Ann’s symptoms in the lead up to her diagnosis, what it was like navigating her diagnosis in what Tami calls the dark ages of fibromyalgia, the treatments and therapies Ann tried before finding a doctor who was able to help her, why it’s often hard to find doctors with the proper knowledge and experience, being pregnant with fibromyalgia, dealing with fibromyalgia alongside postpartum depression, working full-time while struggling with fibromyalgia symptoms then losing a job because of her health, why Ann finally filed for disability, how learning to advocate for her daughter helped Ann advocate for herself, Ann’s decision to become a Certified Fibromyalgia Coach®, what made the most significant difference in turning down her pain, how being a coach and helping other people has helped Ann, the vital role of faith in Ann’s journey, peeling back the layers and finding who she really is, what’s next for Ann, her impactful advocacy work, Ann’s message for someone struggling with fibromyalgia, what to expect from a coaching call with Ann, recognizing that it takes time to heal, and more.

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Episode 76: Stories of Hope and Healing #4

In this special episode, you will hear from five women who have found ways to improve their fibromyalgia over the last few months. As you hear their stories, you’ll notice they all have done different things as there’s no one-size-fits-all magic formula. On average, they have improved their Fibromyalgia Impact Questionnaire (FIQR) score by 28% — one reduced her score by 41%!

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