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Podcast: Awareness Day

Episode 134: The New Face of Fibromyalgia Advocacy with Ann & Lily Garner

“No matter how small, any type of advocacy you do will have an impact.” – Lily Garner

According to the NIH, fibromyalgia affects 1 in 13 women in the US. That means about twice as many women are diagnosed with fibromyalgia as are diagnosed with colon cancer, and while you’re not going to die from fibromyalgia, living with fibro pain and fatigue can feel like its own kind of death. Despite this and the fact that this rate is on par with or higher than many other conditions, fibromyalgia research continues to receive less funding than its counterparts.

The massive gap in advocacy and awareness means that while every woman knows to get a mammogram each year to screen for breast cancer or annual exams for cervical cancer, most doctors have never been taught how to screen for fibromyalgia or how to treat it. Some educational institutions still teach that fibromyalgia is a psychological disorder.

If we want this to change, we need more funding for fibromyalgia research and more people like today’s guests, Ann and Lily Garner, to advocate on behalf of our community. Ann and Lily Garner join Tami in this episode to discuss their experience advocating for fibromyalgia with lawmakers in Washington, D.C. Ann is a Certified Fibromyalgia Coach® who has lived with fibromyalgia for over 20 years and her 14-year-old daughter, Lily, has been living with chronic illnesses for the last six years.

In this conversation, Tami, Ann, and Lily talk about Lily’s diagnoses and the long journey of medical gaslighting to get there, the massive difference it makes when you find the right doctor, Ann’s decision to become a fibro coach, how Ann’s experience advocating for Lily led to her working with a Certified Fibromyalgia Coach®, why Ann and Lily decided to go to D.C. to join fibromyalgia advocacy efforts, the importance of having young people as fibromyalgia advocates, what the day-to-day of their advocacy trip to D.C. looked like, the type of responses and reactions they received from lawmakers in D.C., what’s next for Ann and Lily, Ann’s work as a Certified Fibromyalgia Coach®, and more.

Tami hopes this episode will inspire you to go out there, do your part, and let’s change the world together.

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Episode 75: Heart Health with Lisa Steele George

With the leading cause of death for women being heart disease, and February being American Heart Month, Tami feels it’s the perfect time to bring you her conversation with Lisa Steele George, MA, RYT.

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Episode 36: Fibromyalgia Awareness Day 2020

The 2020 Fibromyalgia Awareness Day episode is a special collection of tips pulled from a virtual event Tami hosted for her clients, coaches, and her coaches’ clients.

Tami asked coaches and clients alike to share their best fibromyalgia management tips, the thing that helped them the most on their fibromyalgia journey, and what it was like to work with a Fibromyalgia Coach. Listen in to hear our best tips to help you feel better.

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