Episode 87: What If It Isn’t Fibromyalgia?

Don’t blame everything on your fibromyalgia.

Your pain, fatigue, sleep issues, and brain fog might not be from your fibromyalgia. We need to dig deeper.

Tami encountered this topic a lot in the last few months of the Certified Fibromyalgia Advisor® training program. We’re not saying you don’t have fibromyalgia – what we mean is, sometimes symptoms can be caused by something else in addition to or instead of fibromyalgia.

Why does it matter? Assuming that fibromyalgia is the blanket reason behind every symptom, you might be missing out on opportunities for healing. By finding the true source of your symptoms, you’ll be able to get the right treatment to help you.

In this episode, Tami is talking about the common areas outside of fibromyalgia that might be causing similar symptoms. She shares why you should learn to read your labs, what it might mean if none of the typical medications are helping, common symptoms of mast cell activation syndrome (MCAS), the huge difference a CPAP machine made for her, why Tami believes myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is separate from fibromyalgia, the importance of testing for chronic infections, why advocating for yourself is essential, how a Certified Fibromyalgia Coach® can help you on your fibro journey, and more.

Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers.

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Listener Shoutout

“I am new to the world of podcasts, and I am so thankful that your podcast exists! It has not only helped me, but my partner too. I am full of questions but am anticipating a lot of these will be addressed through the podcasts, and I look forward to exploring them further.

When I was diagnosed, I was hit hard, thinking that my future would look nothing like what I had envisioned, I am now allowing the hope to return that I can still have the core elements of the future I wanted pre-diagnosis, but it’s just going to look a bit different. I am my own worst enemy, I have been since my teenage years, but I turned a new leaf after listening to the ‘Your Body Isn’t The Enemy‘ episode, and even wrote a poem which involved forgiving my body, apologising to my body and agreeing to work together as one going forward. I am by no means a poet, but I love to be creative in any way I can!

Here’s to hope and freedom and loving ourselves for the amazing things we are capable of instead of punishing ourselves for the things we feel we should have done. Thank you so much for all you are doing for the present and future of those with fibromyalgia.”

~ Liz, a listener in UK