Everyone with fibromyalgia understands how challenging it can be to explain the invisible pain and fatigue that comes with it. Despite affecting millions of people, there’s still a lack of understanding and awareness about fibromyalgia. That’s where the documentary Invisible comes in.Through personal stories and expert interviews, Invisible explores the impact of fibromyalgia on people’s lives and the challenges caused by the lack of understanding and research. For today’s episode, filmmaker Nick Demos joins Tami to discuss his feature documentary on fibromyalgia, Invisible. Nick and Tami have been waiting to do this interview ever since they began working on the film eight years ago. Not wanting to give away the ending before people could watch, a lot had to be kept secret during the production process. Now, they finally get to talk about it publicly.
In this conversation, Nick and Tami talk about how Nick became involved with the making of Invisible, its evolution into a documentary about the fibromyalgia community, challenges with finding men when casting the film, how the perception of fibro as a woman’s disease has contributed to the lack of research and understanding, the difficulty balancing creating a piece of art with making a film that would educate and inspire action, Nick’s on-camera life-changing diagnosis, the unfairness of being discriminated against for something outside your control, why this film is vital to the fibro community, Tami’s experience being a part of the film, why it was especially tricky to visually explore stories about an invisible illness, why community is essential, why Tami and Nick consider some aspects of fibromyalgia as a gift, what most surprised Nick while making the film, the truth behind the lack of research on fibromyalgia, upcoming premiere events, how Nick manages his fibromyalgia, Nick’s message for you, and more.
Invisible is the film that the fibro community has wanted and needed, and we know you’ll love it.
Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers.
About Nick Demos
Nick Demos is a Tony Award-winning Broadway producer, documentary filmmaker, conscious business coach, and manifestation expert.
With over 15 years of teaching pranayama (breath work), yoga, and creativity, as well as thirty years in the entertainment industry, he has traveled from the Tony Awards to ashrams and run a multi-million dollar business in between.
As a coach, Nick guides you to clear blocks and tap into your creative intuition so you can be unapologetically visible and manifest while making monumental impact.
Links & Resources
- Visit InvisibleFilmPDX.com to buy tickets for our LIVE in-person screening of Invisible in Portland, Oregon, on Saturday, May 13.
- To buy tickets for the virtual screening and live Q&A on Saturday, May 20, visit https://kinema.com/events/invisible-stx4mz.
- To schedule a community screening in your area — even if it’s just a few friends in your living room! — visit: https://kinema.com/films/invisible-ntz0cv
- Invisible Film
More from Tami
- For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram.
- Get free copies of Tami’s books here.
- Schedule a consultation with Tami or one of her coaches through the International Fibromyalgia Coaching Institute.
“Invisible is an amazing film. I absolutely loved it. I had my family watching it with me so they can understand what we go through. Thank you.” ~ Ali
“BRAVO!!! I can barely see my keyboard to type this due to the tears falling. The film, Invisible, is so powerful. I feel so seen and understood. It’s so difficult to explain to people/family/loved ones what it is like as someone who experiences this chronic pain and illness. Thank you for this work and for this love.” ~ Marcie
“I rented Invisible for my parents and my partner and each time watching it I appreciated it more. I am so thankful someone made fibromyalgia less invisible by talking about it and how real it is.” ~ reviewer on Instagram