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Alexandra

Episode 121: A Gentler Way to Exercise with Fibromyalgia with Katarina Lotrič

For a lot of us with fibromyalgia and other chronic illnesses, working on our fitness comes in bursts. We’re told exercise is good for us, but when we go out and do what ordinary people do, it’s too much, and we crash. Then, that cycle repeats itself over and over.

Tami has found a tool that helped her and many of her students and coaches to shift away from this up-and-down cycle and into a healthy relationship with being active. It’s an app called Gentler Streak, and she’s been using it over the last year, during which it’s proven valuable for managing fibromyalgia symptoms while increasing fitness levels.

One of the things Tami loves most about Gentler Streak is that it’s more accurately in tune with how she feels and her normal versus a standard that might apply to someone who doesn’t have fibromyalgia.

Today, Tami is joined by Katarina Lotrič, co-founder and CEO of Gentler Stories, the creators behind the app. Katarina and Tami talk about the story behind the creation of Gentler Streak, recognizing that everybody’s normal is different, the unique features of Gentler Streak that make it suitable for individuals with fibromyalgia and other chronic illnesses, the evolution of Gentler Streak to focusing on a holistic approach to activity and wellbeing, challenges with existing health and fitness apps, making room for balance and self-compassion, launching the Gentler Streak app, privacy and how the app works with your Health app, the metrics that are tracked in the wellbeing section of the app, why the decision was made to use sleeping heart rate, the limitations of heart rate variability on the Apple Watch, factors that can impact your sleeping heart rate, how Gentler Streak determines when you’re doing too much activity, insights that can be drawn from heart rate data, the ongoing improvement of the algorithm and the app, tracking other activities and exercise minutes, why it’s important to log your activities at exercises, the special offer you can take advantage of for two free months of Gentler Streak, the important of getting good data in the app, feedback from Tami’s students and coaches about the app, becoming your own companion, how Gentler Streak can help you to treat yourself with kindness, why there isn’t an Android version of the app at the moment, why Tami checks the wellbeing tab in Gentler Streak first thing in the morning, how Tami tracks activity in Gentler Streak, Tami’s goal for using the app, and more.

Tami is so excited to share about Gentler Streak because it’s a gentle and fibro-friendly way to track physical exercise and body movement, and it does it without making you push too hard or feel like you’re not doing enough.

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Episode 120: How Do You Do It All? Ask the Coach

“How do you do it all?”

This question came up during one of Tami’s Ask Me Anything sessions during our annual alumni retreat, and it was so good that she decided to bring it to the podcast.

Before we get into the details, the short answer is Tami doesn’t do it all! At first glance, it’s easy to compare your life to what you see others doing. The problem with that is we tend to forget that we’re only seeing their highlight reel. You never know everything that’s going on behind the scenes at the deep level that you know your own life. On top of that, Tami’s fibromyalgia has been in remission for years, and it took a lot of work to get there. It doesn’t make sense to compare your everyday fibro life with that.

With that context in mind, in this episode, Tami shares how she chooses where to focus her energy and what to prioritize. She’s discussing the importance of making choices to prioritize the things that move you forward, how I learned to be intentional about choosing what to do, what it means to say no to say yes, the challenges of choosing between two good options, how to add more joy into your life, recognizing that you need to choose one habit to build at a time, why it’s worth it to prioritize improving your sleep quality, delegating tasks that are not in your zone of genius, offloading tasks in your personal life, how you can reduce your load with minimal resources, embracing imperfections in life, seeking support from others to reach your goals, the difference between talking to a coach versus a friend, finding the right professional help, and more.

As you continue to move forward into the life that you want to have, don’t be afraid to take a step back. Sometimes, that’s precisely what you need.

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Episode 119: Menopause and Fibromyalgia with Jeanne Andrus

“No woman is going to get to 90 years old without having gone through menopause.” – Jeanne Andrus

As women, society has trained us to be afraid of menopause. To view it as yet another trial we have to suffer through. The truth is that if you learn to accept it, menopause is a gift. And to take advantage of it, you need to support yourself through it. This is the time when we get to put ourselves at the center. After decades of people pleasing, it allows you to take yourself from the periphery and make decisions from a point where you are considered a priority.

Today, Tami is joined by The Menopause Guru, Jeanne Andrus. Tami and Jeanne discuss how Jeanne became the Menopause Guru, her purpose and passion for helping women navigate this period of their lives, the technical definition of menopause, symptoms and indicators of menopause, the potential connection between perimenopause and fibromyalgia, how hormone levels change from perimenopause onward, the adjustment period at the start of postmenopause, why menopause should be viewed as a journey with unpredictable experiences and changes in the body, testing hormone levels to determine menopause status, special considerations for identifying where you are in the menopause journey if you’ve been on hormonal birth control, why Jeanne suggests working with your doctor to taper off your birth control gradually regardless of menopause status, Tami’s experience with suddenly stopping her birth control pills, how the pituitary and thyroid glands work together to regulate hormone production, why it’s crucial to remember that menopause is a natural process, supporting yourself naturally through the menopause transition, the overlap of fibromyalgia and menopause symptoms, how hormone replacement therapy can help, the shift in perspective that many women experience in their early 40s, how biology influences our roles in life, Jeanne’s resources for women on the menopause journey, why you should start thinking about menopause in your mid-30s, embracing menopause as a gift, how fibromyalgia can impact menopause symptoms, and more.

For those of us with fibromyalgia, many symptoms of menopause overlap, like insomnia, brain fog, pain, and fatigue. You cannot blame all of your symptoms on fibromyalgia because they can be coming from many other places, including hormones. If you’re a woman who’s 30 or above, it’s time to start thinking about menopause.

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Episode 118: More Energy with the Adrenal Transformation Protocol with Dr. Izabella Wentz

“The big rule of thumb is to do things that make you feel better.” – Dr. Izabella Wentz

Adrenal dysfunction is a significant contributing factor to fibromyalgia, and over the years, we’ve never met someone with fibromyalgia who didn’t also need to heal their adrenals. For Tami, supporting her adrenals and correcting her adrenal function resulted in her feeling much better.

For today’s episode, Tami is joined by Dr. Izabella Wentz, author of the new book Adrenal Transformation Protocol. Tami and Dr. Wentz discuss Dr. Wentz’s experience with adrenal dysfunction, how she found solutions at different stages of her life, why it’s essential to address both thyroid and adrenal health together, the interactive relationship between cortisol and thyroid hormones, the distinction between between adrenal fatigue and adrenal dysfunction, sources of stress that are often overlooked, dealing with medical gaslighting, the frustrating but common pattern of disrupted cortisol levels affecting sleep, how to regulate cortisol production and optimize your circadian rhythm, why we need natural light exposure where possible, Dr. Wentz’s passion for empowering people to take charge of their health, the Adrenal Transformation Protocol, different ways you can send your body safety signals, making time to minimize stress triggers in daily life and add pleasurable activities, different patterns of adrenal dysfunction, when exercise is beneficial versus detrimental for individuals, strategies for building resilience, the value of positive affirmations and the need to address unresolved trauma, the impact of self-talk on inflammation and stress in the body, the cumulative power of small changes, Dr. Wentz’s message for you, and more.

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Episode 117: Is Fibromyalgia an Autoimmune Disorder? with Dr. Ginevra

“Whenever there’s a lot of interest and dollars put into fibromyalgia research, patients only stand to benefit.” – Dr. Ginevra Liptan

During the pandemic, a potentially game-changing research article showed us that the immune system is involved in creating fibromyalgia pain. The results of this study were remarkable and began to address one of the most common questions about fibromyalgia – whether it is an autoimmune condition. It’s a huge question and an important one for us to keep asking because, at the end of the day, we need more research.

For this episode, Tami interviews Dr. Ginevra Liptan, fibromyalgia specialist and author of The Fibro Manual and The Fibro Food Formula. Tami and Dr. Ginevra discuss the game-changing mouse antibody study that showed the involvement of the immune system in fibromyalgia pain and the potential autoimmune component, how the study could potentially change the treatment approach for fibromyalgia, why Dr. Ginevra is hopeful for significant progress within a decade, fibromyalgia as an orphan disease that no speciality wants to claim, the relationship between antibodies and fibromyalgia symptoms, Dr. Ginevra’s hypothesis on how and why central sensitization is triggered in fibromyalgia, the complexity of the immune system and the challenges in understanding it, the misconception that inflammation is not involved in fibromyalgia, potential benefits of hyperbaric oxygen therapy for fibromyalgia and other conditions, the upcoming Stanza app which uses behavioral therapy techniques to calm the fight or flight response, Tonix pharmaceuticals’ phase three trial for a new fibromyalgia medication, exploring the possibility of transmitting fibromyalgia symptoms through blood donation, the search for effective fibromyalgia treatments, how to navigate the overwhelming and confusing nature new fibromyalgia research, the role of intuition and personal research in choosing treatment, recognizing that there is no magic bullet solution, why we advocate for combining different approaches for better results, and more.

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Episode 116: Do More Making & Crafting with Jenni Grover

When we have an interest or a passion, but we’re not pursuing it, we don’t feel good.

Creativity is a vital part of wellness; for many people, it helps them manage their illness and feel better. No matter how you’re feeling, it’s important to know that staying creative and vibrant is possible.

Today, Tami welcomes Wellness Coach Jenni Grover to talk about how you can do more crafting, making, and creating. Jenni has a passion for making sure that people get to keep being themselves and expressing themselves through their creativity while also taking good care of their bodies.

In this conversation, Tami and Jenni discuss why Jenni created her ChronicBabe project, her passion for helping people feel better despite chronic illness, why she made the shift to being a wellness coach, the connection between physical and mental health and creativity, what it has been like for Jenni to adapt her life to support her love for writing without sacrificing her health, why we need to let ourselves evolve to meet our current circumstances, embracing a growth mindset, the vast difference it makes when we surround ourselves with supportive individuals from friends and family to a coach, how to getting started with accessible crafts, getting out of the comparison trap, pacing strategies and making sure you’re honoring them, tips for staying creative on low-energy days, how timers help with preventing burnout and maintaining productivity, balancing urgency and context, being intentional about taking breaks and enlisting the help of others, the empowering feeling of making conscious choices, two pacing tools Jenni loves, practical ways to get back to making things again, taking care of your brain which is your most important tool, finding balance in self-care, finding beauty in everyday life and how it can inspire creativity, what it’s like to work with Jenni as a wellness coach, and more.

Even if you’re not a crafter or a maker, Tami and Jenni’s conversation can apply to any project and fibro life in general.

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Episode 115: Fibromyalgia Stories of Hope & Healing #7 (Certified Coaches)

A certified Certified Fibromyalgia Coach® is not a doctor. We can’t prescribe or diagnose, but we can help fill the gap in fibro knowledge for you and your doctors. IFC graduates have received hundreds of hours of fibromyalgia-specific training. We can teach you and your providers more about fibromyalgia and help you advocate for yourself and get better results.

Today, as we continue the seventh installment of our Stories of Hope and Healing, Tami interviews two more graduates of our Certified Fibromyalgia Coach® training program. After going through both our Certified Fibromyalgia Advisor® and Certified Fibromyalgia Coach® training programs over the last two years, Penny and Ann are nearly symptom-free.

In this episode, you’ll hear about their journeys and how they got where they are today. They are sharing Penny’s two-year journey to becoming almost symptom-free, the huge difference it made to work with the right providers, her experience going through early menopause as a result of a hysterectomy, how she finally got to the root causes of her pain, recognizing that each person’s fibro treatment recipe is unique, why becoming a Certified Fibromyalgia Coach® has been so rewarding for Penny, the challenges of navigating medical systems, the positive ripples of working on our fibromyalgia, the massive changes in Ann’s personal life since starting the Certified Fibromyalgia Advisor® program, why she feels like she’s finally come full circle, the changes which have made the most significant positive impact on Ann’s fibromyalgia, how helping other people as a fibromyalgia coach has been helpful for Ann on her fibro journey, some of her favourite things to recommend to her clients, Ann’s message for anyone struggling with fibromyalgia, how a fibromyalgia coach can help you on your journey, what it looks like to work with a Certified Fibromyalgia Coach®, and more.

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Episode 114: Fibromyalgia Stories of Hope & Healing #7 (Certified Advisors)

For many of us, the fibromyalgia diagnosis left us feeling like, “Who am I now?”

Fibromyalgia changes how we see ourselves, relate with others, and interact in our lives.

What if you could significantly improve your quality of life? Or have the energy to do the things you love? Or to travel and enjoy yourself?

Today is the seventh installment of our Stories of Hope and Healing. Tami interviews five recent graduates of the Certified Fibromyalgia Advisor® program, and they share their journeys from pre-diagnosis to where they are now after graduation. One graduate even improved by 87%, going from the most symptomatic student in class to being essentially symptom-free today.

In this episode, you’ll hear how Lisa’s fibromyalgia diagnosis led to an existential crisis and feelings of being spiritually unmoored, how her coach, Robin, helped to support her healing journey and build her healthcare team, celebrating the little wins with a “ta-da” list, the various approaches that contributed to Lisa’s 63% improvement in her fibromyalgia impact questionnaire score, the recognition that healing requires energy, resources to learn more about low-dose naltrexone, Lisa’s message for anyone dealing with a spiritual crisis, Kim’s post-diagnosis struggle with improving her symptoms after recognizing that the FDA-approved drugs were not a good fit for her, learning how to listen to what your body needs, how Kim’s coach, Robin, helped her to tune into your body’s voice, getting honest with yourself about the impact that fibromyalgia has on your life, how Kim used the tools she learned in class and her healthcare team to get through a recent significant fibro flare, the holistic changes that helped Kim improve her symptoms by 46%, recognizing the significance of an individual approach to symptom management, the far-reaching positive impact we can make by sharing what we know, the significant changes Connie has felt since going through the Certified Fibromyalgia Advisor® program and improving her symptoms by 87%, how Connie’s coach, Brenda, helped her in numerous ways throughout her healing journey, Connie’s thyroid health, the huge difference that finding the right diet has made for Connie, Susan’s experience of trying various integrative and regular doctors, diets, and treatments, the frustration of not finding a solution until discovering the Certified Fibromyalgia Advisor® program, how Susan’s symptoms impacted her career as a kindergarten teacher, techniques and strategies that helped to improve Susan’s quality of life, the ways that her coach helped with implementing the new strategies, giving yourself permission to take care of yourself without guilt, staying on top of your pain, Lauren’s deep dive into fibromyalgia resources right after her diagnosis, deciding to work with her coach, Julie, early in her journey and the impact she’s had on Lauren’s fibromyalgia journey, why coaching has been Tami’s secret weapon in managing her fibromyalgia, how you can join the next Certified Fibromyalgia Advisor® class, and more.

If you’ve been looking for new ideas on your fibromyalgia healing journey, you’ll definitely find some in today’s episode.

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Episode 113: Help Your Doctor Help You with Dr. Ginevra Liptan

As patients, we must take control of some aspects of our health care to get what we need.

Many fibromyalgia patients are familiar with the feeling that we know more about fibromyalgia than our healthcare providers do. How can you get help from someone who knows less about your condition than you? When you combine that feeling with the broken healthcare system in the US and things like fibro fog, many of us leave our appointments feeling like we’re no better off than when we went in.

Today’s episode is a segment from our July Fibromyalgia Stories of Hope and Healing event featuring our special guest commencement speaker, Dr. Ginevra Liptan. In her speech, Dr. Ginevra breaks down the three main friction points and how you, as a patient, can help overcome them and help your doctor to help you.

Dr. Ginevra discusses the knowledge gap between healthcare providers and patients and how it impacts fibromyalgia treatment, challenges of the fragmented and struggling US healthcare system, how fibro fog and other fibro factors affect the patient-doctor interaction, how resources like The FibroManual can help you bring the correct information to your provider, taking a curious, collaborative approach to your relationship with your healthcare provider, Dr. Ginevra’s tips for getting around the fragmented and siloed healthcare system, why you might want to request an extended appointment, the benefits of telemedicine especially for fibromyalgia patients, how you can maximize your appointment time regardless of fibro fog, why you should consider tracking your symptoms, taking control of certain aspects of your healthcare to ensure you receive the necessary support and treatment, and more.

In addition to these tips, studies have shown that the more you work with a coach, the better your results will be. A Certified Fibromyalgia Coach® can help you prepare for your doctor visits and implement what your doctor has asked you to do. You don’t have to take this journey alone.

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Episode 112: Becoming an Empowered Patient with Gisèle McDiarmid

Having been through the Western medical system for 20 years without meaningful change, Gisèle McDiarmid decided to take her health into her own hands. She felt the need to explore further and find specialists who knew about invisible illnesses, and she finally received a diagnosis and the help she needed to rebuild her health.

With that, she finally had enough energy to focus on empowering herself to maintain her health and well-being as much as possible without invasive interventions. That’s when she learned about the International Fibromyalgia Coaching Institute (IFC) and our Certified Fibromyalgia Advisor® program.

Today Tami welcomes Certified Fibromyalgia Coach® Gisèle McDiarmid to share her experience in our training programs. In this conversation, Gisèle and Tami discuss Gisèle’s journey with fibromyalgia, multiple chemical sensitivities, and chronic fatigue syndrome, the struggle to find the right treatments and support, the importance of self-care and learning to prioritize your own wellbeing, the benefits of working with a coach, how Gisèle discovered the IFC and her decision to become a Certified Fibromyalgia Coach®, empowering yourself with knowledge and communication tools for doctors, the ins and outs of fibromyalgia, its symptoms, and management strategies, how having a support group can make a huge difference in your quality of life, what made the program pandemic-proof, how self-care benefits us and those around us, benefits of becoming a Certified Fibromyalgia Coach®, two of Gisèle’s client success stories with breast implant illness and long COVID, the value of having a coach that truly understands the experiences and challenges faced by fibromyalgia patients, recognizing that it is possible to have a better quality of life if you’re committed to taking better care of yourself, and more.

For both Tami and Gisèle, being a coach has been their secret weapon in managing their fibromyalgia and helping others. No matter where you are now, don’t give up. You can find the right tools and support to manage your symptoms and improve your quality of life.

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