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Alexandra

Episode 134: The New Face of Fibromyalgia Advocacy with Ann & Lily Garner

“No matter how small, any type of advocacy you do will have an impact.” – Lily Garner

According to the NIH, fibromyalgia affects 1 in 13 women in the US. That means about twice as many women are diagnosed with fibromyalgia as are diagnosed with colon cancer, and while you’re not going to die from fibromyalgia, living with fibro pain and fatigue can feel like its own kind of death. Despite this and the fact that this rate is on par with or higher than many other conditions, fibromyalgia research continues to receive less funding than its counterparts.

The massive gap in advocacy and awareness means that while every woman knows to get a mammogram each year to screen for breast cancer or annual exams for cervical cancer, most doctors have never been taught how to screen for fibromyalgia or how to treat it. Some educational institutions still teach that fibromyalgia is a psychological disorder.

If we want this to change, we need more funding for fibromyalgia research and more people like today’s guests, Ann and Lily Garner, to advocate on behalf of our community. Ann and Lily Garner join Tami in this episode to discuss their experience advocating for fibromyalgia with lawmakers in Washington, D.C. Ann is a Certified Fibromyalgia Coach® who has lived with fibromyalgia for over 20 years and her 14-year-old daughter, Lily, has been living with chronic illnesses for the last six years.

In this conversation, Tami, Ann, and Lily talk about Lily’s diagnoses and the long journey of medical gaslighting to get there, the massive difference it makes when you find the right doctor, Ann’s decision to become a fibro coach, how Ann’s experience advocating for Lily led to her working with a Certified Fibromyalgia Coach®, why Ann and Lily decided to go to D.C. to join fibromyalgia advocacy efforts, the importance of having young people as fibromyalgia advocates, what the day-to-day of their advocacy trip to D.C. looked like, the type of responses and reactions they received from lawmakers in D.C., what’s next for Ann and Lily, Ann’s work as a Certified Fibromyalgia Coach®, and more.

Tami hopes this episode will inspire you to go out there, do your part, and let’s change the world together.

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Episode 133: Embrace Your Fibromyalgia Wellness Style℠

Have you ever wondered why some people have an easier time managing their fibromyalgia than others?

We all have natural strengths and weaknesses and approach life in a unique way. Managing our fibromyalgia is no different.

Our personalities play a central role in how we approach life and our fibromyalgia, and research has shown that our personality traits have a direct influence on health outcomes and fibromyalgia symptoms.

Empowerment comes from figuring out exactly where your natural strengths and challenges lie so that you can support yourself in a sustainable way that will bring about the best possible outcome for you. To help you on that journey, Tami created the Fibromyalgia Wellness Style℠ Quiz, based on the five-factor model of personality, which measures specific traits from low to high.

In this episode, Tami discusses why she created the Fibromyalgia Wellness Style℠ Quiz, the five-factor model of personality, how the “big 5” personality traits affect fibromyalgia management, the two traits most associated with fibromyalgia symptoms and health outcomes, how Tami developed the four Fibromyalgia Wellness Styles℠, the benefits of understanding your Fibromyalgia Wellness Style℠, additional information and support you’ll receive if you choose to sign up for your advanced profile, early feedback from students and coaches who have discovered their Fibromyalgia Wellness Style℠, the main characteristics and challenges of each of the four Fibromyalgia Wellness Styles℠ – The Ponderer, The Prevailer, The Playmaker, and The Perfectionist, and more.

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Episode 132: Advocating for Fibromyalgia Research Funding with Melissa Talwar

You’re probably aware of the need for more research funding to help us develop new treatments for fibromyalgia. You’re probably also aware of the lack of training most doctors have when it comes to fibromyalgia. But did you realize that the two are connected? Research not only uncovers new potential treatments but also shapes how and what medical schools teach our providers.

Right now, the exact causes of fibromyalgia are unknown. We’ve uncovered many aspects of how it presents, but not enough for it to be definitively classified by medical institutions. That means we don’t even know what specialists to see when we need a diagnosis.

How will this change? More research and advocacy for funding. Advocacy is so important, and in order to advocate for yourself well, you have to be educated about your illness and know yourself well. The better educated you are, the better you can advocate for your needs. This is a significant reason why Tami has created so many episodes of the podcast on Fibromyalgia research and also why she’s so passionate about sharing her experience and the experiences of other people who have fibromyalgia.

Today, Tami is joined by Melissa Talwar, Executive Director of the Support Fibromyalgia Network, a national nonprofit dedicated to empowering individuals with fibromyalgia. In this conversation they discuss why the Support Fibromyalgia Network was formed and how it’s evolved since its founding, what federal advocacy looks like, tackling the lack of funding for fibromyalgia research, the need for systemic changes and research to be able to change the way medical providers are trained, the power of collaborative efforts and patient involvement in driving these systemic changes, the impact of research funding on developing effective treatments and classification for fibromyalgia, current challenges in classifying fibromyalgia, how you can get involved in fundraising and advocacy efforts for fibromyalgia funding and research, the process of going to Capitol Hill to meet with our representatives, how the Support Fibromyalgia Network supports and trains people who want to get started with advocacy, the need for preparedness in sharing our personal stories and experiences, the significance of obtaining governor proclamations and its impact on creating awareness and recognition, the power of a unified voice and collective advocacy, Melissa’s message for anyone who feels like there’s no progress despite the advocacy, being open to experimenting and layering different modalities and tools, exploring a holistic approach to improving your quality of life, upcoming initiatives for the Support Fibromyalgia Network, how a Certified Fibromyalgia Coach® can advocate for you and help you to advocate for yourself, resources you can access to learn more about fibromyalgia research and advocacy, and more.

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Episode 131: GLP-1 Medications with Dr. Isabelle Amigues

GLP-1 medications like Wegovy, Ozempic, and Mounjaro are all the rage right now. Originally marketed as drugs to help diabetics with insulin resistance, they were later discovered to help people lose weight.

With those possibilities, GLP-1 meds are positioned to revolutionize health in the US since about two-thirds of the population is either overweight or obese and at risk for conditions like diabetes and cardiovascular disease.

But there’s been another new discovery—GLP-1 medications also have anti-inflammatory properties. Several different studies have since shown that GLP-1 medications help to reduce inflammation in the liver, kidneys, heart, and even the brain (which is of particular interest to fibromyalgia patients).

Today, Tami is joined by rheumatologist Dr. Isabelle Amigues to talk about GLP-1 medications and how they can potentially help those of us with fibromyalgia. In this episode, Tami and Dr. Amigues discuss the unusual way Dr. Amigues is incorporating GLP-1 medications in her practice, what you need to know about GLP-1 medications, the anti-inflammatory effects of GLP-1 medications and the implications, the link between inflammation and adipose tissue, the potential impact of GLP-1 medications on aging-related complications and inflammatory conditions, GLP-1 medications as a tool to get you over the final hurdle to fibromyalgia remission, utlizing mindful eating to help you make better food choices, tapping into the virtuous cycle of weight loss, breaking the stigma and releasing the judgment around our weight, factors to consider before taking GLP-1 medication, who should avoid these medications, putting the horror stories of bad experiences and side effects into context, next steps if you’d like to consult with your doctor about taking a GLP-1 medication, why it’s crucial to work with a qualified specialist, the affordability of GLP-1 medications medications, and more.

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Episode 130: Ways To Overcome Privilege In Fibromyalgia? Ask The Coach

“How do you propose we help low-income individuals with CFS and fibromyalgia? Self-care and wellness are rooted in privilege, choice, fellowship, support, time, and money to invest in themselves.”

So many people living with chronic illnesses are forced to navigate the issue of how best to support themselves with limited resources. While you’ll often hear Tami talking about coaching and our training programs on this podcast, that’s not everything available in the fibromyalgia community. Tami and other organizations offer many resources that allow people from all income levels to access tools and support to improve their quality of life.

It’s also valuable to recognize that while wellness is often rooted in the privilege of having money to invest in ourselves, self-care doesn’t have to be. Self-care is about how we treat ourselves, and it’s not a direct link to our income level. In today’s Ask The Coach installment, Tami answers how low-income individuals can access help with CFS and fibromyalgia and whether you can still work with a fibro coach if you haven’t been diagnosed with fibromyalgia.

In this episode, Tami discusses the connection between wellness, self-care, and privilege, why I believe self-care has nothing to do with your income level, challenges faced by low-income individuals with fibromyalgia who rely on state healthcare programs, free resources and support provided by Tami and the International Fibromyalgia Coaching Institute, organizations that can help you implement the suggestions for improving your symptoms, patient assistance programs that can help with covering the cost of medications, tips for accessing lower-cost options for supplements and services, advocacy and support offered through organizations like Support Fibromyalgia Network, Fibromyalgia Care Society of America, and the Sherri Little Foundation, how you can advocate for fibromyalgia awareness and support, working with a fibromyalgia coach without a fibro diagnosis, training to work with conditions outside of fibromyalgia, and more.

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Episode 129: Whole Body Vibration for Fibromyalgia with Sarah Aboody, T-Zone Vibration

Exercise is one of the foundational pillars of health, but with fibromyalgia, we have extra sensitive bodies and nervous systems, and we need to be gentle. That means finding the right exercise to meet our needs can be tricky.

Today, Tami is excited to introduce you to a tool helping her feel even better and that she’s recently been obsessed with: a T-Zone Vibration machine. These machines use whole body vibration, a modality used for decades to increase muscle strength, bone density, and more. In fact, several studies have shown the benefits of whole body vibration for improving fibromyalgia symptoms.

To explore this further and share the results of a small informal study with our students and coaches, Tami is joined by Sarah Aboody, the Owner and General Manager of T-Zone Vibration. In this conversation, Sarah and Tami discuss how whole body vibration works and its uses for improving muscle strength, bone density, flexibility, mobility, and circulation, why oscillating vibration works best for fibromyalgia, benefits and uses of whole body vibration, the results of the informal study on the use of the T-Zone Vibration with Tami and some of our students and coaches, exercise as a pillar of health and how the T-Zone Vibration machine can help to build the habit, guidance for optimizing the use of the machine, why pain and fatigue might temporarily increase after whole body vibration, adapting whole body vibration for different needs, benefits of T-Zone Vibration machines, comparison of the smaller and larger vibration machines, special offers if you want to try a T-Zone Vibration machine, guidelines for getting started with whole body vibration, important considerations and precautions for individuals for whom whole body vibration may not be suitable, and more.

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Episode 128: The Power of Rest: Embracing Life’s Winter Season

Rest is not a luxury. It’s required for healing your mind, body, and soul.

A month and a half into the new year, everything around us is about making this your best year ever. From classes to articles, social media posts, and podcast episodes, there’s so much messaging about becoming a new and better version of yourself.

While growth is a good thing, and the transition into a new year can be a great time to make the changes to move closer to the life you want, you might find that these messages aren’t resonating. What if you’re feeling exhausted or frustrated? What if you can’t figure out where on earth you’d scrounge up the energy to make these changes?

Today, Tami talks about the power of rest and embracing life’s winter seasons. In this episode, you’ll learn about the significance of rest and its impact on healing, exploring life’s seasons and how they relate to personal growth, spring as a season of new growth, what it looks like to open yourself to new experiences, summer as the season of maturing, why we’re often more comfortable in the summer seasons of our lives, how these seasons relate to our fibromyalgia, fall as a season of harvest, acknowledging the process of letting go and accepting change, winter as a time to embrace rest as a necessary component for healing and growth, the power of winter rest, understanding what rest means, using the 80/20 rule for managing your energy, practical tips for embracing more rest in your life, the concept of deep relaxation, the benefits of embracing moments of a “blue mind state,” how to cultivate a “blue mind state,” aligning your actions to embrace the season you’re in, remembering the inevitability of spring’s arrival, things to consider leaving behind during your personal winter, ways to nurture that power of rest, the delicate balance between self-care as work and self-care as compassion and grace for individuals with fibromyalgia, and more.

While you’re waiting for spring to come, lean into your winter season and accept it for what it is. It’s an essential part of life and carries a lesson for you. Get the rest you need and reach out for help to move forward into spring growth.

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Episode 127: Fibromyalgia Stories of Hope & Healing #8

Most of us with fibromyalgia have to spend a lot of physical and emotional energy teaching the people in our lives about our condition. From friends and family to doctors and coaches, it can be draining.

That’s just one of the ways working with a Certified Fibromyalgia Coach® transformational. It’s invaluable to have someone in your corner who knows what you’re going through because they’ve been there and have the tools to guide and support you.

What would it be like to improve your quality of life significantly? How would your life change if you could improve your symptoms by 50%?

Today, in the eighth installment of our Stories of Hope and Healing, Tami shares inspiring excerpts from our January 2024 event. You’ll hear from four graduates about their stories and how they’ve been able to improve their fibromyalgia symptoms. On average, our graduates improve their symptoms by about 50% during the three-month program, and many people’s lives look dramatically different today than they did before starting.

In this episode, you’ll hear about Julie’s diagnosis and how she went from years of just one to two down days per year to four years of barely being able to get out of bed, why the journey of becoming a Certified Fibromyalgia Coach® was transformational for Julie, learning to give yourself grace on your bad days, why Julie wrote Chronic Illness at Work, her passion for advocating for the fibromyalgia and chronic illness communities, how she’s set and surpassed goals she never believed she ever could, the importance of setting goals and celebrating your successes, why Kaylynne ultimately decided to join the Certified Fibromyalgia Advisor® program, what surprised her (as a skeptic) about working with her fibro coach Brenda, why being able to address her fatigue had a massive knock-on effect on many areas of her life, prioritizing your energy for restoring yourself, the changes that made the biggest impact on improving her fibromyalgia symptoms, developing a positive relationship with your body, Kaylynne’s message to high achievers and perfectionists who are struggling with their fibromyalgia, Viktoriia’s early symptoms of fibromyalgia and how traumatic events in her life made it more difficult to manage, her move to Canada and search for relief from her increasing symptoms, the huge reduction in symptoms Viktoriia experienced after joining the Certified Fibromyalgia Advisor® program and working with fibro coaches, the series of difficult events and experiences that led Viktoriia to join the Certified Fibromyalgia Advisor® program for a second time and what she did differently, her recognition that she has to actively choose to support her body every day, Viktoriia’s new approach to life management, the tools that have made the most significant impact on her fibromyalgia, the impact of food on her well-being, how her coach Robin helped her with emotional overwhelm and her mental health, the challenges of managing stress and emotions, letting go of perfection, Deb’s decision to become a Certified Fibromyalgia Coach®, how changing her approach resulted in an improvement in symptoms of 68%, the value of experimentation and her experiences working with clients, what it’s like living with an invisible illness, why being a coach helps you with your fibromyalgia, the significance of focus and tools to manage fibromyalgia symptoms, focusing on living in the current body you’re in and making necessary changes for managing fibromyalgia, reducing stress and allowing time for the body to heal, how you can join the next Certified Fibromyalgia Advisor® program, what you can expect from the course, and more.

If you’re looking for ways to feel better, you’ll be inspired to hear their stories.

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Episode 125: How To Handle Health Discrimination and Harassment with Meredith Holley

“Taking action and being clear about what we expect does not have to be disrespectful.” – Meredith Holley

It’s very common for people with invisible disabilities like fibromyalgia to experience workplace conflict and discrimination because of it. From snide remarks to outright harassment, it can feel so isolating and even make your symptoms worse.

Despite that, most people don’t want to file a lawsuit. While it sounds so noble to have civil rights litigation, it’s a stressful process that often damages everyone involved. People want the tools and support to create a healthy workplace culture where issues are resolved so people can keep their jobs and receive the medical care they need.

In this episode, Tami is joined by attorney Meredith Holley to talk about speaking up for your needs and handling harassment and discrimination respectfully, whether it’s happening at work or at your doctor’s office. They discuss Meredith’s journey into workplace conflict mediation and communication coaching, her experience with sexual harassment in the workplace, arming yourself with tools to empower yourself at work, how workplace conflict can worsen your fibromyalgia symptoms, the three pillars of empowered communication and how you can use them to handle workplace harassment and discrimination, acknowledging the impact of harassment and our tendency to minimize its effects, the weight of experiences that our cultural values label as “little”, the concept of internalizing blame and responsibility for others’ actions, the importance of setting boundaries, the emotional impact of carrying labels and experiences related to disability, recognizing the choice to embrace or limit yourself in response to your health situation or workplace experiences, the initial steps of noticing and acknowledging harassment, the three steps for bystander intervention, strategies for handling harassment and discrimination with respect and self-focus, listening to your body and taking actions to ensure personal safety in challenging situations, the value of understanding the best ways to communicate with your healthcare providers, navigating challenges with requesting workplace accommodations, embracing open-mindedness and flexibility and a focus on desired outcomes, navigating the balance between self-advocacy and collaborative decision-making with healthcare providers, using professional expertise as a tool, resources you can access, Meredith’s message for you, and more.

If you’re experiencing workplace conflict, know you are not alone and did nothing to deserve it. There are steps we can take to ease the pain and energy drain. This is a problem that’s worth solving.

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Episode 124: One-Year Breakthrough To Fibromyalgia Healing With Kim Osborne

We often underestimate what we can accomplish in a year. The goal can seem so massive that we think we’ll never get there and don’t even bother to try.

That’s why it’s so important to hear stories of hope from people who have been where you are. There is so much you can do in a year; whether or not you go for it, the year will go by. It’s up to you to decide what you want to do between now and then.

Today, we’re having a special bonus episode where Kim Osborne, a current student in our Certified Fibromyalgia Coach® training program, joins Tami. In September 2022, when Kim came to Tami, she was struggling. She was at the end of her rope and didn’t know what else to try. Many of the things that used to help her cope weren’t working for her anymore, and even with her training as a health coach and yoga instructor, she was still feeling miserable. In this episode, Kim shares what worked for her and how her life transformed over the past year.

In this conversation, Tami and Kim discuss Kim’s fibromyalgia diagnosis and the start of her journey, her experience with prescribed medications and struggle with the recommendations from her rheumatologist, the downward slide many of us experience where our lives get smaller and smaller, why Kim decided to explore alternative solutions including seeking a fibromyalgia coach, the decisive moment when you realize life can get better, the feeling of finding hope and support in a community who truly understands you, the powerful impact of being coached by the right person, surprising lessons that came from working with Kim’s fibromyalgia coach, Robin, the drastic difference between a trip Robin took a year ago and again this year, being open to changing goals and expectations when we recognize what our bodies need, Kim’s progress in the past year, the importance of taking action between now and the future, recognizing the real role of a coach, why seeing a functional medicine doctor was game changing for Kim, the subtle difference between wanting to fix fibro and wanting to help yourself feel as good as possible, why Kim decided to take the Certified Fibromyalgia Advisor® course instead of only working with a coach, Kim’s plans for the upcoming year, her experience working with clients during her Certified Fibromyalgia Coach® internship, remembering that each person’s fibromyalgia journey is unique, Kim’s message of hope and encouragement if you’re struggling with your fibromyalgia journey, and more.

If you don’t have your own hope, borrow Kim’s. You can find ways to feel better, and we would love to help.

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